Ford’s Friends

There are many children battling Spinal Muscular Atrophy and many of those children’s families have created foundations or organization to raise funds for a cure and awareness of SMA.  Please take a moment to visit some of these sites and see what they are doing and what you can do to help end the #1 Genetic KILLER of infants!

Families of SMA
http://www.fsma.org/

Getty Owl Foundation
http://gettyowl.org/

HOPE for SMA
http://www.hopeforsma.org/

Gwendolyn Strong Foundation

http://thegsf.org/home/

B4SMA Blankets
http://www.our-sma-angels.com/b4sma/

Sophia’s Cure Foundation
http://www.sophiascure.org/

Miracles for Madison and Friends
http://www.miracleformadison.org/

 

 

 

 

 

One thought on “Ford’s Friends

  1. Kayla and Scott just wanted to let you know that you are not alone in this area of having a baby with sma type 1. (sorry I had to find you by the way of the newspaper. that is so sad. Hope that guy is caught and has to pay).
    I/we live in Mt. Chestnut between Prospect and Butler. We had 3 babies (with type 1) born in 1992,1994 and 1996 and first one lived 6 months, second one lived 5 months and 7 months. it was a difficult thing to go thru. Our Faith got us thru. in 2000 we adopted 2 boys that are now in there late teens.
    I’m here for support if you need any, just to have a listening ear..
    I want to read the rest of your story on your site…you have done a great job at documenting everything and have all the information to inform everyone about the gentics of the disease.
    Your family is in my prayers. There has to be a cure somewhere.
    VirLinda and Randy Bieber

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